Organizaciones relacionadas con Adrenoleukodistrofia

National Organization for Rare Disorders (NORD)

55 Kenosia Avenue

Danbury, CT 068131968

Phone: 203.744.0100

Toll Free: 1.800.999.6673

http://rarediseases.org

ALD Connect

c/o Anthony Gonzales

Massachusetts General Hospital

CNY149 13th St., Room 6401

Charleston, MA 02129

http://www.aldconnect.org

 

ALD Family Support Trust

8 Morley House

320 Regent Street

London, W1B 3BB United Kingdom

Phone ·: 02076313336

http://www.aldfst.org.uk

ALD Life

PO Box 43642

London, SE22 0XR United Kingdom

Phone #: 02084737493

Email: info@aldlife.org

www.aldlife.org

CLIMB (Children Living with

Inherited Metabolic Diseases)

Climb Building

176 Nantwich Road

Crewe, CW2 6BG United Kingdom

Phone #: 4408452412173

email: enquiries@climb.org.uk

http://www.CLIMB.org.uk

 

ELA European

Association Against Leukodystrophies

2, rue MilesVignes

54521

Laxou Cedex, 61024 France

Phone #: 33383309334

email: ela@elaasso.com

http://www.elaasso.com

Australian Leukodystrophy Support Group, Inc.

Nerve Centre

54 Railway Road

Blackburn, VIC 3130 Australia

Phone #: 61395847070

800 #: 1800141400

email: mail@alds.org.au

http://www.alds.org.au

Fight ALD

P.O. Box 3318

Vista, CA 92085

Phone #: 7602125731

email: info@fightald.org

http://www.fightald.org

Genetic and Rare Diseases (GARD)

Information Center

PO Box 8126

Gaithersburg, MD 208988126

Phone #: 3012514925

800 #: 8882052311

http://rarediseases.info.nih.gov/GARD/

Hunter's Hope Foundation, Inc.

PO Box 643

6368 West Quaker Street

Orchard Park, NY 14127

Phone #: 7166671200

800 #: 8779844673

Email: info@huntershope.org

 http://www.huntershope.org

Kennedy Krieger Institute

707 North Broadway

Baltimore, MD 21205

Phone #: 4439239200

800 #: 8008733377

Email: info@kennedykrieger.org

http://www.kennedykrieger.org

Madisons Foundation

PO Box 241956

Los Angeles, CA 90024

Phone #: 3102640826

Email: getinfo@madisonsfoundation.org

http://www.madisonsfoundation.org

March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, NY 10605

Phone #: 9149974488

800 #: 8886634637

Email: Askus@marchofdimes.com

http://www.marchofdimes.com

NIH/National Institute of

Neurological Disorders and Stroke

P.O. Box 5801

Bethesda, MD 20824

Phone #: 3014965751

800 #: 8003529424

http://www.ninds.nih.gov/

 

The Global Foundation For

Peroxisomal Disorders

5147 S. Harvard Avenue, Suite 181, Tulsa, OK 74135

Fax: 9185160227

Email: contactus.thegfpd.org

http://www.thegfpd.org

The Arc

1825 K Street NW, Suite 1200

Washington, DC 20006

Phone #: 2025343700

800 #: 8004335255

Email: info@thearc.org

http://www.thearc.org

The ALDAMN

Global Alliance

http://www.aldamnglobalalliance.org

 

The Myelin Project

Phone #: 3102304298

800 #: 8008693546

Email: info@myelin.org

http://www.myelin.org

United Leukodystrophy Foundation

224 N. 2nd St.

Suite 2

DeKalb, IL 60115

Phone #: 8157483211

800 #: 8007285483

Email: office@ulf.org

http://www.ulf.org/

 
   

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 



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